What is Going on With Our Healthcare System?

I never thought looking back two years ago I would be in the place I am today.  Two years ago I was struggling but nothing like I am now.  I was enjoying holidays, working, get together with friends, spontaneously going out and having fun. I had faith in our medical system even with the long wait times I believed I was being treated with respect and by people who truly cared in my health and helping me.  I no longer think that.

This morning I was trying to find articles on our healthcare system in our province. The only articles I could find seemed to be focused on the lack of nurses in our province which I don't argue is an issue but we seem to be focusing on nurses when I want to question our lack of professionals/doctors who are the front line of diagnosing and coming up with treatments for us? Why is it that the focus of our healthcare has fallen on the shoulders of nurses?  They are a vital part of system I agree but it's not their job to diagnose people. After years of having doctors ignore my concerns and  finally finding one who has had me seen by a few professionals/specialists after months of waiting to get in...should some focus not go to this issue too? Why is our wait time months apart?  I guess because they cannot truly figure out my case and not seem to be on deaths door (at least not yet I hope) it is easier to shuffle me along until I give up? I hate to tell them I won't give up and if by my appointment next month I don't get the help I need I plan on taking my case further up the chain.

You all know if you are following my journey how I feel I am being left to my own devises to figure out what is going on and why my body seems to have betrayed me in such a cruel and unusual way. The more I research I know the first neurologist I had pegged it with Stiff Person Syndrome but now that they have taken away the only medication that was helping me I am watching and feeling myself quickly decline and it is intensifying the feeling of hopeless that is quickly taking hold of my mind.  Yesterday I had a short visit with my niece who was in from out of town, she had an accident at work which resulted in her having a seizure and spilling a form of acid on herself as she went down. Since this accident she has had many seizures and it sadden me when I heard her talk as it sounds like a person who had a stroke.  Our medical system that she and I have come to depend on like me told her they can find nothing wrong and maybe it's all in her head. Seems to be a theme here that if I as a professional can't see a black and white answer then it's all in your head. She like I has a tape of what is happening during her seizure but like I, her neurologist did not feel it was necessary to watch it.  Why?  Why does our medical professionals ignore us as patients when we can show they what is happening?  If someone out there can answer this for me I would be interested in knowing the answer to this question.  How can two people and I know there are many more out there rather then being treated being told it's their problem to solve?  Are we lacking the proper training in our province's medical program?  I am beginning to think so.  I pray that no one else in my circle in this province will come down with health concerns that are not black and white for I know first hand the battle you have in store.  

As for me as I told a couple of friends this morning, I would have felt better if they told me I had terminal cancer with a week to live at least I could accept that answer then none at all.  I have also come to the realization should you have a complex case in this city I wish you the best of luck because you are doomed in a self imposed prison designed by a lack of professionals that seem to not exist in this city and if by chance they do... I pray you find them.  And when you do let me know so I can get the help I and now my niece are so desperately seeking.